Sadness, it took you when you had more time ahead.

Coldness of your skin, as I tucked you in bed

Laughter we avoided as it might make you cough

Every moment painful, the same with my loss.

Raynaud’s phenomenon, that turned hands to stone

Oxygen cylinders all over all our homes

Drugs I can’t spell, piled up to swallow

Everything hard but you wouldn’t wallow 

Reminders of you are not all this disease

Magnificent moments, that put me at ease

Always my mum………


It’s world Scleroderma Day tomorrow, today would have been my mum’s birthday.


5 thoughts on “Scleroderma”

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