Sadness, it took you when you had more time ahead.
Coldness of your skin, as I tucked you in bed
Laughter we avoided as it might make you cough
Every moment painful, the same with my loss.
Raynaud’s phenomenon, that turned hands to stone
Oxygen cylinders all over all our homes
Drugs I can’t spell, piled up to swallow
Everything hard but you wouldn’t wallow
Reminders of you are not all this disease
Magnificent moments, that put me at ease
Always my mum………
It’s world Scleroderma Day tomorrow, today would have been my mum’s birthday.